Skyleigh's Journey

To start from the beginning I found out I was pregnant November 2008 and I was 5 weeks. Besides being very sick everything seemed to be normal. Just like most couples we were really ready for the 20 week sono so that we could find out if we were having a boy or a girl. So finally after what seemed like forever we finally got to schedule that sono. The day was March 5th 2009 when we found out that we were having a baby girl and were very excited. We already had our name picked out, Skyleigh. Immediately following the sono we went to see the ob and in that appointment he told us that they were not able to get good measurements on some of her body. He told us that he wanted us to a specialist and that he would schedule and appt for the following week. My stomach sank, everyone was waiting to see what we were having and now we had to deliver the news that they were going to have to check her measurements again and that something could be wrong. Everyone tried to ensure us that everything would be ok but I was terrified. Brian tried to be positive and tell me not to worry, he was just trying to be strong for me because I was so worried.
So the next week comes and we are sitting in the office at Texas Tech waiting not so very patiently for my name to be called and finally the time comes. The nurse that talks to us gets all of our family background and also tells about the different markers that they look at when diagnosing a problem. As soon as she left the room I started to cry, I couldn't believe this was really happening. We go in to the sono room and they start taking measurements of Skyleighs head, femur, chest, etc. They measured everything. After the sono the doctor comes in to talk to us and she informs us that Skyleigh has skeletal dysplasia, but it is too early to tell which kind it might be but she feared it was going to be one of the more lethal skeletal dysplasias. She said that the ratio of her chest to her heart was one of the big determining factors. At this point her heart was taking up over 50% of her chest because her chest was so small therefore it would not allow her lungs to fully develop.
At this point I was so overwhelmed I was not expecting any of this conversation to ever happen. My mind was jumping back and forth thinking how are we going to make the work if she does live and if she doesn't how will I ever make it through. All of my joy was gone. We didn't want to lose our sweet little girl that we already loved so much.
After the appointment we shared the news with our parents, grandparents, and siblings. It was the hardest news to share.